There is currently no known cure for patients who suffer from EB, and an emotional Souness fought back tears as he described the heartbreaking situation parents find themselves in when facing the disease with their children.

“It is the most horrendous disease,” Souness told BBC Breakfast. “If you’re inflated by it, you must wake up every morning and say ‘Why me?’ It is a desperate situation, and then the parents have to deal with that – and that’s what we’re doing.”

A meeting with a 14-year-old girl named Isla four years ago convinced Souness to try and tackle the tragic nature of EB, and the pair have since stayed in touch, with Isla describing to the football icon the horrendous reality of her condition.